An illustration of someone using a laptop computer, deep in thought.
Background Gradient

Understanding Urinary Continence

‘You in Urology’ is intended for people living with urological conditions (including bladder cancer, prostate cancer and overactive bladder) and their caregivers. The information provided by Astellas is for informational purposes only and is not meant to replace the advice of a healthcare professional.

 

This website was initiated and funded by Astellas Pharma Europe. All patient and healthcare organisations involved in the development of the platform received a fee for their time.

Urinary continence

Your bladder is the organ that stores urine.1 Urinary continence means being able to keep the water (urine) in your bladder until you need to pee. Urinary incontinence is peeing when you don’t mean to and when it doesn’t suit you to go to the toilet.2,3 This is sometimes called ‘bladder leakage’. Millions of people around the world live with urinary incontinence, and there are many causes.2

There are three main types:

  • Stress urinary incontinence: peeing due to effort or pressure on your bladder. For example, when you sneeze, cough, laugh or exercise. This often happens because the parts of the body that control urination are weak or damaged.2,3
  • Urge urinary incontinence: an urgent need to pee, which can cause you to wet yourself if you don’t reach a toilet.3 This is often due to having an overactive bladder (OAB).3
  • Mixed urinary incontinence: a combination of the above types of urinary incontinence.2,3

It’s okay to ask: Speaking up is the first step

Even though it is so common, we don’t talk about urinary incontinence enough. The good news is that for most people, there are options including treatments to help them.

 

Talking about urine can feel awkward. But if you don’t talk about it, people may not know you need support. Asking questions about urinary continence also helps you feel informed about any treatment options you are considering.

The “You in Urology” pan-urology panel share their advice for getting support with continence.

Urological conditions can affect urinary continence

Urological conditions are health problems affecting the parts of men’s and women’s bodies involved in making and passing urine, or the male reproductive organs.4  Some people with these conditions are more likely to have urinary incontinence. This includes overactive bladder (OAB), bladder cancer and prostate cancer.2,5,6  However, the reasons can be quite different.

OAB is a chronic condition in which a person regularly has a sudden and compelling urge to pee. This is because the bladder muscles squeeze suddenly for unknown reasons.7 This makes you need to pee even when your bladder isn’t full.8 You might also wake up during the night to pee (called “nocturia”). The need to pee can be so urgent that the bladder empties before you reach a toilet and you wet yourself.7 It is estimated that around 1 in 5 people have symptoms of OAB.9

Prostate cancer is when cancer cells develop in the prostate. It only affects men and other people assigned male at birth. The prostate is a gland in the male reproductive system. It sits under the bladder, around the tube that connects the bladder and testicles to the penis (called the urethra).10

 

Following some treatments, up to 60% of people with prostate cancer report dripping or no urinary control.11 This is usually an effect of their cancer treatment.12  Some treatments or surgeries are more likely to cause urinary incontinence than others.11 Some surgical techniques can improve urinary continence recovery.13

 

Surgery to remove the prostate is called prostatectomy.14  It can sometimes affect the parts of the body that control urinary continence.15  It is more likely to cause urinary incontinence than other treatments.11

Bladder cancer is when cancer cells develop in the lining of the bladder. Sometimes the cancer also spreads to the bladder muscle.16

 

Bladder cancer can make you need to pee more urgently and frequently.17 Some types of treatment for bladder cancer may lead to urinary incontinence.5

 

For example, one treatment option is surgery to remove the bladder.  Nearby affected tissue is also removed.18 This is called ‘radical cystectomy’.18 This is followed by a procedure called ‘urinary diversion’.18 This creates an alternative system for removing urine from the body.18 There are different types of urinary diversion. Some divert the urine into a pouch outside the body.18 Another method creates a new bladder inside the body.18 This is called a ‘neobladder’.18,19  This method can sometimes cause urinary incontinence, but it can be managed.20  One year after surgery, around 15% of people still have urinary incontinence during the day and 38% at night.19

 

For some women who have an orthotopic neobladder (bladder reconstruction), hypercontinence can also happen. This means having trouble peeing or fully emptying the bladder.21

Urinary continence is a big part of everyday life

We understand that excessive peeing, or peeing when you don’t mean to, can have a big impact on your life.

For some people, living with urinary continence can make them:

  • Feel isolated, anxious or depressed22,23
  • Feel bad about themselves or their body22
  • Avoid physical activity in case it causes a leak22
  • Avoid leaving the house or using public transport22
  • Avoid social, romantic or intimate situations22

Many people find it difficult to talk openly about urinary continence. Urinary incontinence is often misunderstood. 
Remember, urinary incontinence is a health issue. It affects millions of people of all ages and backgrounds.24 It is nothing to be ashamed of. If you are experiencing this, know that you are not alone.

There is support to help you manage your urinary incontinence

Your care should centre around you. If urinary incontinence is affecting your life, there are options including treatment to help you live well. We hope these resources will help you to speak more openly about it and ask for the help you need.

 

Every approach has benefits and risks that should be carefully considered with your healthcare team. The best option for you will depend on many factors. This could include your symptoms, stage of disease and personal preferences.

 

What's most important is that you are fully informed of all your options. And that you are supported to manage the impacts on your life. You should feel empowered to ask further questions and reassured that you have received the answers you need.

Living well with urinary incontinence

An illustration of a couple embracing and smiling warmly.

Urinary Incontinence Doesn’t Have To Control Your Life

Find out about ways to manage and live with urinary incontinence.

An illustration of a person holding a mug, standing confidently and smiling.

It’s Okay To Ask About Urinary Incontinence: Talking To Your Healthcare Team

Prepare what you want to ask or tell your doctor, or write down what they tell you.

Useful websites

Patient organisations and the European Association of Urology (EAU) Patient Office provide many resources across a range of topics to support people with urological conditions.

 

Please note: The following links will take you to websites that are not owned or controlled by Astellas. Astellas is not responsible for the information or services on these sites. Astellas is not affiliated with and does not endorse any specific patient or healthcare organisation.

Logo of the European Association of Urology Patient Office.

The EAU Patient Office puts patients and patient advocates at the heart of clinical guideline development, awareness and patient education. It provides reliable information for patients with urological conditons.

Europa Uomo logo.

Europa Uomo represents 31 patient organisations in countries across Europe. They work with patient communities and healthcare professionals to improve diagnosis, treatment, support and quality of life for people affected by prostate cancer.

Fight Bladder Cancer logo.

Fight Bladder Cancer focuses on providing support for people affected by bladder cancer. It provides resources, information and tips for people at different stages – from diagnosis to post treatment. It also raises awareness, campaigns for more research and aims to drive change in health policy around bladder cancer care.

Associazione Palinuro logo.

Associazione PaLiNUro is an Italian organisation that aims to listen to, support and inform people affected by bladder cancer. In addition to sharing and confronting common problems, it wants to be a point of reference, defend the rights of the sick, help improve quality of life, be the voice of the sick person to those who “decide”, and actively involve the patient in their care.

Logo of the World Bladder Cancer Patient Coalition.

The World Bladder Cancer Patient Coalition represents 16 patient organisations from 13 different countries. It provides information on bladder cancer, can help you find local organisations, and offers a range of toolkits and resources. 

Logo of the World Federation of Incontinence and Pelvic Problems.

The World Federation of Incontinence and Pelvic Problems (WFIPP) is an organisation acting as a global platform for all people living with incontinence and pelvic floor dysfunction. It provides information, resources and support for people with incontinence and pelvic floor dysfunction, irrespective of the cause.

  1. National Cancer Institute. Bladder. Available from: https://www.cancer.gov/publications/dictionaries/cancer-terms/def/bladder. Last accessed: April 2026
  2. NHS. Urinary incontinence. Available from: https://www.nhs.uk/conditions/urinary-incontinence/. Last accessed: April 2026
  3. National Institute for Health and Care Excellence. Incontinence – urinary, in women: Definition and background information. Available from: https://cks.nice.org.uk/topics/incontinence-urinary-in-women/background-information/definition/. Last accessed: April 2026
  4. The Urology Foundation. Urology health. Available from: https://www.theurologyfoundation.org/urology-health/. Last accessed: April 2026
  5. American Cancer Society. Bladder incontinence (urine leakage). Available from: https://www.cancer.org/cancer/managing-cancer/side-effects/stool-or-urine-changes/bladder-incontinence.html. Last accessed: April 2026
  6. White, A.J., Reeve, B.B., Chen, R.C., Stover, A.M. & Irwin, D.E. Urinary incontinence and health-related quality of life among older Americans with and without cancer: a cross-sectional study. BMC Cancer 13, 377 (2013). https://doi.org/10.1186/1471-2407-13-377
  7. Bladder & Bowel UK. Overactive bladder syndrome: Adult bladder & bowel UK. Available from: https://www.bbuk.org.uk/wp-content/uploads/2022/09/Overactive-Bladder-Syndrome-adult-Bladder-Bowel-UK.pdf. Last accessed: April 2026
  8. Mayo Clinic. Overactive Bladder. Overview. Available from: https://www.mayoclinic.org/diseases-conditions/overactive-bladder/symptoms-causes/syc-20355715. Last accessed: April 2026
  9. Zhang, L., Cai, N., Mo, L., Tian, X., Liu, H., & Yu, B. Global prevalence of overactive bladder: A systematic review and meta analysis. Int Urogynecol J 36, 1547–1566 (2025). https://doi.org/10.1007/s00192-024-06029-2
  10. Cancer Research UK. What is prostate cancer? Available from: https://www.cancerresearchuk.org/about-cancer/prostate-cancer/about. Last accessed: April 2026
  11. Europa Uomo. EUPROMS booklet: Quality of life after prostate cancer treatment [PDF]. Available from: https://www.europa-uomo.org/wp-content/uploads/2023/03/EUPROMS_booklet_English_Feb23_singles.pdf. Last accessed: April 2026
  12. Parsons BA, Evans S, & Wright MP. Prostate cancer and urinary incontinence. Maturitas, 63(4), 323-328 (2009). doi: 10.1016/j.maturitas.2009.06.005. Epub 2009 Jul 16. PMID: 19615834
  13. Urkmez, A., Ranasinghe, W., & Davis, J. Surgical techniques to improve continence recovery after robot-assisted radical prostatectomy. Translational Andrology And Urology, 9(6), 3036-3048 (2020). doi:10.21037/tau.2020.03.36
  14. Cancer Research UK. Surgery to remove your prostate gland. Available from: https://www.cancerresearchuk.org/about-cancer/prostate-cancer/treatment/surgery/surgery-remove-your-prostate-gland. Last accessed: April 2026
  15. Cleveland Clinic. Incontinence after prostate surgery. Available from: https://my.clevelandclinic.org/health/symptoms/incontinence-after-prostate-surgery. Last accessed: April 2026
  16. NHS Inform. Illnesses and conditions. Bladder Cancer. Available from: https://www.nhsinform.scot/illnesses-and-conditions/cancer/cancer-types-in-adults/bladder-cancer/. Last accessed: April 2026
  17. NHS. Symptoms of bladder cancer. Available from: https://www.nhs.uk/conditions/bladder-cancer/symptoms/. Last accessed: April 2026
  18. Cancer Research UK. Surgery to remove the bladder. Available from: https://www.cancerresearchuk.org/about-cancer/bladder-cancer/treatment/invasive/surgery/removing-bladder. Last accessed: April 2026
  19. Xu, M., Chen, S., Liu, X., Luo, Y., Wang, D., Lu, H., Jiang, M. & Chen, X. Best evidence for rehabilitation management of urinary incontinence in patients with bladder cancer following orthotopic neobladder reconstruction. Asia-Pacific Journal of Oncology Nursing, 12, 100647 (2025). https://doi.org/10.1016/j.apjon.2024.100647
  20. Cancer Research UK. Looking after your new bladder. Available from: https://www.cancerresearchuk.org/about-cancer/bladder-cancer/living-with/new-bladder. Last accessed: April 2026
  21. Nseyo, U., Ginsberg, D. Functional Outcomes of Orthotopic Neobladder in Women. Current Urology Report 25, 277–285 (2024). https://doi.org/10.1007/s11934-024-01223-7
  22. Peinado-Molina, R. A., Martínez-Vázquez, S., Hernández-Martínez, A., & Martínez-Galiano, J. M. Impact and influence of urinary incontinence on physical activity levels. European Urology Open Science, 55, 50–58 (2023). https://doi.org/10.1016/j.euros.2023.07.004
  23. Bladder & Bowel UK. Understanding the stigma of urinary incontinence. Available from: https://www.bbuk.org.uk/understanding-the-stigma-of-urinary-incontinence/. Last accessed: April 2026
  24. NHS. Overview: Urinary incontinence. Available from: https://www.nhs.uk/conditions/urinary-incontinence/. Last accessed: April 2026

MAT-GB-NON-2025-00403 May 2026